癌症病患保留生育能力的真相


  【24drs.com】隨著存活率增加,與癌症病患存活者有關的議題愈發重要,其中之一是保留生育力,病患須對他們的選項有所瞭解,有一個新資源可幫助年輕、兒童癌症病患及其家長和主治醫師。
  
  這項名為「SaveMyFertility」的活動是由隸屬於西北大學Oncofertility Consortium Endocrine Society公共教育組所發起,是提供給成人病患和癌童家長的一項多媒體資源,可提供更多在癌症治療前後保留生育力選項的資訊,以及保護他們治療後的荷爾蒙健康狀態。
  
  此外,它提供資訊及指引給關心癌症病患和存活者生育健康的腫瘤科醫師、內分泌科醫師與其他健康照護提供者。
  
  Endocrine Society管理委員會成員、Oncofertility Consortium主任Teresa Woodruff博士在聲明中表示,決定如何最佳地保護成人或孩童癌症患者的生育力,應納入每個醫師和新診斷癌症之年輕患者的討論事項;我們建立SaveMyFertilty是為了幫助病患和醫師擁有這個至關重要的討論,並提供保留生育力的資訊工具。
  
  最近一篇研究發現,和接受諮商者相比,在治療前未接受到保留生育力之選項諮商的女性癌症存活者,後來造成遺憾,並且生活滿意度降低;即使病患最後決定不保留生育力,仍須先轉介。
  
  共同作者、加州大學舊金山分校生育力保留計畫主任Mitchell Rosen醫師表示,有些病患形容可從癌症中存活感到快樂,但是相當遺憾沒有保留生育力,對於腫瘤科醫師沒有為他們存活後的生活品質考量感到不滿意。
  
  有些研究指出,生育力保留這個議題影響了約10%的癌症病患,即便最近的調查顯示腫瘤科醫師有討論癌症治療對生育力的可能影響,但是其中不到半數例行性轉診病患給生殖醫學專家。
  
  SaveMyFertility這項活動包括了3個主要組成:1)給健康照護專業人士的一系列指引手冊,強調成年男性與女性患者與癌童的治療選項,並提供會談點,以改善病患討論情況;2)手機iSaveFertility應用程式,讓醫師可以下載SaveMyFertility手冊,並使用電子郵件發送由行動小組提供之4頁的病患教育單張(英文版和西班牙文版)給病患;3)網站,提供列印版醫師手冊和雙語版病患教育單張(英文版和西班牙文版)。
  
  根據Hormone Foundation基金會指出,所有工具都是由癌症溝通專家、男性、女性及兒童腫瘤科醫師監督下發展完成;指引手冊將發送給超過20,000名醫師,涵蓋腫瘤科、小兒腫瘤科、婦產科、泌尿科、生殖內分泌科的醫師與專家。
  
  Hormone Foundation基金會主任Patricia Green在聲明中表示,SaveMyFertility幫助彌補了癌症病患和醫師的需求缺口,面對診斷和保留生育力之治療之間的這幾週,SaveMyFertility提供病患應詢問的關鍵問題,以及他們所需的資訊,以在照護上的重要決定時更有效率地與醫師合作。
  
  資料來源:http://www.24drs.com/professional/list/content.asp?x_logon=W&x_idno=6555&x_classno=0
  

Cancer Patients Get the Lowdown on Fertility Preservation

By Roxanne Nelson
Medscape Medical News

June 24, 2011 — As survival rates increase, issues affecting long-term cancer survivors are becoming more important. One of these is preserving fertility, and patients need to be made aware of their options. A new resource will make that easier for young adults, the parents of children diagnosed with cancer, and the physicians who treat them.

The Hormone Foundation, which is the public education arm of The Endocrine Society, and the Oncofertility Consortium at Northwestern University, in Chicago, Illinois, have launched a new initiative called SaveMyFertility. It is a multimedia resource for adult cancer patients and the parents of children with cancer who want learn more about options for preserving their fertility before and during cancer treatment and protecting their hormonal health after treatment.

In addition, it provides information and guidance to oncologists, endocrinologists, and other healthcare providers concerned with the reproductive health of cancer patients and survivors.

"Deciding how best to protect an adult or child's fertility should be part of every physician's discussion with a newly diagnosed young cancer patient," said Teresa Woodruff, PhD, director of the Oncofertility Consortium and member of The Endocrine Society's governing council, in a statement. "We created SaveMyFertilty to help patients and their physicians have this vitally important discussion and to provide information tools about fertility preservation."

Routine Referrals Still Not Made

As previously reported by Medscape Medical News, a recent study found that female cancer survivors who do not receive counseling about options for fertility preservation before treatment commonly have long-term regret and a reduced satisfaction of life, compared with those who were counseled. Even if patients decide not to opt for fertility preservation, the referral is still important.

"Some patients have described . . . feelings of being happy to have survived their cancer, yet have significant regret about not undergoing fertility preservation and not being satisfied with their oncology doctors' regard for the quality of their life after survival," coauthor Mitchell Rosen, MD, director of the Fertility Preservation Program at the University of California at San Francisco, told Medscape Medical News at that time.

Some research indicates that the issue of fertility preservation affects about 10% of cancer patients. Even though recent surveys suggest that oncologists are discussing the potential impact of cancer treatment on fertility, fewer than half of them routinely refer patients to reproductive medicine specialists.

Fills An Unmet Need

The SaveMyFertility initiative consists of 3 main components: a printed pocket guide series for healthcare professionals that outlines therapeutic options for men, women, and children, and provides talking points to improve patient discussion; the mobile iSaveFertility application that allows physicians to download the SaveMyFertility pocket guides and email the 4 patient education fact sheets provided by the initiative directly to patients in both English and Spanish; and the Web site, which offers printable versions of the physician pocket guides and bilingual patient fact sheets (English and Spanish).

According to The Hormone Foundation, all of the products were developed under the guidance of a cancer communications specialist and physicians who have expertise in oncology and endocrinology in women, men, and children.

The pocket guides will be distributed to more than 20,000 physicians in a wide range of specialties, including oncology, pediatric oncology, obstetrics and gynecology, urology, and reproductive endocrinology.

"SaveMyFertility helps fill an unmet need for cancer patients and their doctors," said Patricia Green, director of The Hormone Foundation, in a release. "Faced with only a few weeks between diagnosis and treatment to preserve fertility, SaveMyFertility provides patients with key questions to ask and information they need to effectively partner with their doctors in critical decisions surrounding their care."

The project was developed in partnership with The Endocrine Society and the Oncofertility Consortium. It was funded by educational grants from EMD Serono and Merck.

    
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